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Monday, May 18, 2009

Answering questions

Recent posts have generated a couple of questions from readers.

I'll address the stitching-related question first. A couple of readers have asked about Jean Hilton's ScottLee. I'm sorry to say that the instructions for this project are very hard to find. Jean taught it only twice: once for a national seminar, and once for a group of stitchers near Phoenix.

It is not available for retail sale (though perhaps her family might change that in the future - who knows?). I did not take either class, but I was lucky enough to be given the chart by somebody who took the class at seminar. I do not have my chart any longer, as I passed it on to another stitcher who admired it here on my blog. Right now, that's the only way it can be legally obtained - by gift or purchase from one of the stitchers who has the instructions from class.

Oh - and if you're one of those lucky few, I know of a couple of ladies looking for the chart!

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Erin Update: The second question was about Erin, and the next steps for her hip dysplasia. (Background: She was born with both hips dislocated as a result of pregnancy complications.)

We visited the orthopedist this past week. The X-ray only took two tries. The first try caught her in the middle of a wiggle and was blurry :-). After the second, non-wiggle attempt, succeeded, I managed to get a new diaper on with no accidents on the table!

The X-rays confirmed that both hips are still very much dislocated. Now I'm waiting for the doctor's secretary to call to set up the mid-June appointment for a "closed reduction" procedure. In this procedure, Erin will be anesthetized and the doctor will attempt to manipulate the hips into the correct position. There's a slight chance he may operate at that time if he thinks it will be a minor correction. If all goes well, she'll then be put in a cast from mid-chest to knees. If, for some reason, the hips won't cooperate, we'll wait 'til she's a bit bigger before going in for "open reduction", a.k.a. surgical reparation, before casting her.

As for the cast - don't ask about diaper logistics. It doesn't sound like fun. :-(

Update: In answer to Megan's question: the cast will be on 3-4 months (to let the muscles, tendons, etc. move into the correct position to support the hips), and yes, hopefully after that she'll be able to go on as a normal kid. The doctor says there's a chance she might need to have additional work done over the next several years, but we're praying this won't be necessary.

Thank you to Robbie and Jean for your support and sharing your stories about similar situations. I'm grateful for your caring notes!

Oh - and thank you to Carin for wishing me a happy birthday on Friday after reading through the archives! :-)

3 comments:

Elmsley Rose said...

Oh god. The casting/hip dysplasia sounds so so terrible.

But it can all be fixed up, can't it? I sincerely hope that once this is over with she'll go on to a normal life.

NCPat said...

Keeping you in my thoughts, and fingers crossed for you! You are doing so well, I know you can hang in there!

Susan said...

I just ran across your blog and wanted to let you know that my niece was born with hip dysplasia which was missed by her doctor and wasn't diagnosed until she was 9 months old. She was put into a cast just like your daughter's for 9 months (her doctors said the time in the cast should be the same as her age at diagnosis) and adjusted to it so well. When it came time for her to crawl, she figured out how to move just like a seal does.

Once she came out of the cast, she quickly caught up to her peers and had no further problems. She's now a happy, healthy (and athletic) 14-year-old girl who runs beautifully.